~*PBP*~

Recently we were shocked to hear someone that we love a great deal was diagnosed with PBP or better known as Progressive Bulbar Palsy. Progressive Bulbar Palsy: In this disorder, the nerves controlling the muscles of chewing, swallowing, and talking are affected, making these functions increasingly difficult. The voice may have a nasal tone. In some people, emotions are changeable. Because swallowing is difficult, food or saliva is often inhaled (aspirated) into the lungs, causing choking or gagging and increasing the risk of pneumonia. Death, which is often due to pneumonia, usually occurs 1 to 3 years after the disorder begins. PBP is a rarer form of Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease).

This diagnosis has been very hard to accept for me and those around this individual. I have not "outed" this person online because they have asked me not to. This person has not shared with some of their friends the diagnosis and I am respecting her wishes.

In doing research online I came across a fundraiser or walk for ALS. I have decided to participate in this walk in the hopes of finding resources to help those suffering from this disease. The walk is October 24th 2009 at Bryan Park in Richmond Virginia for any of you who would like to participate. I will attach a link to this blog for those who are interested in donating to sponsor me on this walk. I hope that you can and will donate to help fight for those suffering from ALS.